They are all big supporters of EBMRF, a volunteer nonprofit foundation dedicated to the support of medical research for Epidermolysis Bullosa Medical Research Foundation (EBMRF), its causes, the development of successful treatments, and ultimately, its cure. EB is a group of diseases that afflicts young children. They are characterized by blister formation after minor trauma to the skin.
This family of disorders, most of which are inherited, range in severity from mild to the severely disabling and life-threatening diseases of the skin. This rare genetic disorder affects all ethnic and racial groups. Estimates indicate that as many as 100,000 Americans suffer from some form of EB. The EBMRF is unique in that the Foundation pays no salaries.All work, including executive, legal, accounting, development and administrative, is done on a volunteer basis. It is the goal of the Foundation to keep operating costs at less than 1% of incoming donations so that a full 99% of contributions can go directly to the research program. More information can be found at www.ebkids.org.
This limited-edition mommy-and-me style was designed by celebrity mom Brooke Shields for "A Colorful Cause". 15% of the sale from this style will be donated to the charity EBMRF, a nonprofit volunteer foundation supporting medical research into the causes, treatments and cures for Epidermolysis Bullosa, a disease that affects young children.
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